Dr. J. Noonan’s request:

I am very interested in the heart disease in NS and would like you to ask in the next news letter if the parents would be willing to send me or you a note regarding their child’s cardiac problem. The following questionnaire would be very helpful:

Child’s Name
Birth Date
Cardiac Diagnosis
Name of Child’s Cardiologist and Address
Child’s Present Condition (alive or dead)

If possible parents could send a copy of medical records, especially echo, cardiac cath and surgery records. If willing, parents could sign a statement:

I hereby give consent for Dr. Jacqueline Noonan to review my child’s _______________ (name) medical records.

_______________ Parent signature

My fax number is (606)-323-3499, and my mailing address is Division of Pediatric Cardiology, 800 Rose Street, Room MN 472, Lexington, KY 40536-0298

When I retire next month I plan to spend time studying the nature history of heart disease in NS.

Thanks again for arranging such a great conference.

Sincerely,

Jacqueline A. Noonan, M.D.
Pediatric Cardiologist

The Noonan Syndrome Support Group, Inc. and any associated parties will not be held responsible for any actions readers take based on their interpretation of published or disseminated material. Please review medical treatment and decisions with your physician.